CHD

Altitude vs. Sea Level in Single Ventricle Physiology…about as exciting as it sounds

April 8, 2016

Big changes in our household..as of the end of June, we are leaving Colorado and moving to Michigan.  This has prompted quite a few “wtf” responses from friends near and far alike, including the chef at my hospital cafeteria. We quickly pull out the Lula card in explanation so someone doesn’t try to commit us. […]

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First Year of Hypoplastic Left Heart Syndrome

May 31, 2015

If a picture is worth a thousand words, then I’m hoping a video counts as even more. As the big slacker I am, I haven’t written a single word in Lula’s baby book, so I made her a video for her first birthday. If you have the time, we would love it if you could […]

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Hypoplastic Left Heart Syndrome By Numbers

February 4, 2015

To read the initial post regarding Lula’s heart click here. Once a day for the past five, six, seven, eight months, I’ve thought about writing an update about Lula. I think about what I should write, where I should start. Clearly, the obvious choice would be conception…but interesting of a story as that might be, my parents […]

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